Profile
|
|||
| User: | fibro_witch (1329059)  Walking a fibro witches path
Studing the world of work and how we work with it |
||
| Name: | fibro witch | ||
Message | Send fibro_witch a text message on his/her cellphone/pager. | ||
| Website: | welcome to the world of a fibro witch | ||
| Location: | Revere, Massachusetts, United States | ||
| Birthdate: | 1959-08-16 | ||
| Bio: | I am a pagan who has been on this path for some twenty plus years. I became ill with something during the winter of 01/02. Not knowing what was wrong with me, I went from doctor to doctor, and was tested for every thing from thyroid problems, various cancers, heart disease, even STD’s, finally I was tested for Rheumatoid arthritis and lupus. I ended up with a series of ‘diagnoses’ first pneumonia, then rheumatoid arthritis, then lupus, then fibromygalia, and back to LUPUS again. www.lupus.com This disease has already killed a member of my family. I live in fear of dieing the way my Aunt did, calling family members and asking them to pray for her release from the pain of lupus. I know things have gotten better since her death, but not by much. I have also been told off and on (mostly by people, not doctors) that everything I was going through was just in my head, or even worse, that I was ‘acting’ to punish some one. Nothing can be crueler, than hearing that, nothing. In May of 2004 I received full disability from Social Security, something I never expected. I have discovered no one plans on being fully disabled, never. My disability has opened my eyes to a side of life I never knew existed. One thing I have learned about lupus is this illness plays hide and seek with itself, and my body. Some days I feel wonderful, others I am in such pain I wish for release. Disabled is such a strange and loaded word, especially when your disability is a hidden one the way mine is. Some days I am just as strong and healthy as I was before this illness struck me down. I have even been known to go from near death, to superwoman when my friends and family need me. Other days, I can’t move more than a few inches without help. Some times, something as small as doing housework is enough to drain me for a day or more. This illness, like other forms of arthritis can also be triggered by changes in the weather, by cold day, by warm days, by any days. Some days I start out well, only to be felled when I run out of spoons. This was a major change in my life as I have always worked, and done well. I consider myself to be an accomplished and intelligent person, who liked to challenge myself mentally and physically when ever possible. I saw mental accomplishments to be far more important that physical ones. Among my mental accomplishments are, I was the 1994 American Society of Safety Engineers Student of the Year, and I have an IQ of 142, I read several periodicals, and books, leaning more toward current events, and history. I prefer the genre science fiction or speculative fiction to most ‘main stream’ fiction. I truly hate what this disease is doing to my brain as well as my body. I feel my memory fading away, and my knowledge going with it. I am more concerned that my mind will go than my body will. When I was in my teens and starting to explore paganism I had an aunt who claimed to be a witch. As I learned and followed this path, I realized that she was a witch in name only. This and other experiences have made me cautious of people who openly flaunt being ‘witches’. I prefer the term pagan myself, although in practice I am a witch. I practice solitary Wicca, on a path that only I walk on. One idea that I hold dear is that every witch walks his or her own path. Sometimes as I join with other witches, our paths might for a moment merge, and then separate, each slightly changed from the touch. I married in my early twenties, and moved from my beloved Boston to Ct, where I stayed till I moved back to Boston in October of 2003 when my, at the time, husband and I separated. We are now divorced. I was able to take my Keeshond, Byron with me when I left. He is more than a companion he is a friend. When I have no one else, I have him. I also have four cockatiels, four large fish tanks, with assorted interesting fish. I happen to love the unusual fish, the oddity that no one else has, or would want. I have a total of nine fish tanks, the others are not hooked up at the moment. I live just north of Boston, close to the T so I can travel into the city for my many doctors’ appointments. I see a total of six, yes SIX doctors at the moment, all in treatment of this rotten disease. One of the ways I am fighting this illness is with a lot of medications, lots of medications, and a total of 37 pills a day. I am determined to fight this disease and come out from this entire stronger healthier person. Come join me on my journey, I move slowly, I worship the goddess, and it should be quite the adventure. I have split my journal into several 'custom' subject lists. They are 1- Girly Stuff (mostly about clothing, jewelry, shoes) 2- TMI Pain (talking about my medical issues) 3- Dogs (Byron my keeshond, and other pet issues) 4- Lupus (my personal nemesis - I will win this war and heal) 5- Boston (All the things I love about my home town) 6- Red Sox (my home team, my number one interest, my religion) If you don't know what lists you are on, just ask. ------------------------------------------------------------------ my 'read' shelf:  Web Counter And just so it's in writing in many many places, I do not want to be kept alive by machines, should my illness or anything else put me into a coma. | ||
| Memories: | 21 entries | ||
| Pictures: | over 70 public | ||
| Interests: | 111: 80's, air_america, american pit bull terriers, american_society_of_safety_engineers, angies list, aquariums, arisia, arthurian legends, asse, barbie collecting, barry manilow, baseball, beaches, beauty, beltaine, birding, birds, black clothing, books, boskone, boston, boston goth, brigid, cavies, chronic pain, cockatiels, colbert report, comics, computers, cooking, crystals, daily show, dawn dolls, dead can dance, diet, disability, dr pepper, dragons, fantasty, fashion, fibromyalgia, fiction writing, fingernails, folk music, food, freedom_of_speech, gardening, google earth, goth, gothic, hair, halloween, herbs, history, home decorating, home repair, hopkinton, humor writing, ice cream, ireland, irish mythology, jason lee, jrr tolkien, keeshond, kevin millar, king arthur, london, lost, lupus, magic, makeup, massachusetts, medicaid, medicaid drug benefit, music, my name is earl, osha, pagan, paganism, patriots, pern, pi con, political commentary, queer eye, reading, red sox, revere, risk management, safety, samhain, santa claus, science fiction, sex, shoes, social security, south park, spell casting, stonehenge, strikethrough2007, tarot, theo epstein, tim wakefield, tivo, trance, tuatha dé danann, v2v, vintage clothing, wicca, witchcraft, worldcon, writing | ||
| Friends: | |||
| Mutual Friends: | 157: 0485c10, 43duckies, _tallian_, amenquohi, amizada, amokk, angelovernh, annielovesyou, apsfa, ariawannbe, ashkes_muse, azhure, badgerthorazine, beldar, beldon, blue_eye, bobquasit, bostondave, browneye54, brycentara, bunnicula38, ceciliatan, cheshyre, chiara607, ckd, cobaltgreen, comradecharlie, con_brat, cristovau, cure4lupus, cynderellie, dagrrl, dalbino83, damonbradl, dancing_kiralee, dandelion_diva, daneph, darkkyss, darthgeek, dawna, day_pirate, dda, deviantfantasy, devvie, deza, dicotomygrrl, dj_rabid_angel, dodging_fate, dreaminndigital, drebbles, echild, elyssa, enderfem, faerytwee, felis_sidus, femmefaeryvixen, figmentj, first_clark, fuzzbucketdeux, ganesh, goblyn_queen, gothabby, gothtique, graykin, gtpooh, happypete, harrietbrown, henglaar, hyperbard, jaspoetry, jasra, jiapa, jmspencer, joyfulkel, jynx, kimeepower, kissoflife, knot_frayed, koshmom, kradical, l_is_for_lupus, lordlnyc, lupabella, lupaloo, m0usegrrl, mabfan, mandy_rosie, melanie, merrick42, metagnat, mikescomics, minmay7, momlady, moonstone_fae, msmemory, mzrowan, nakedfaery, nebris, nichy, noire, nursemae, ohhjuliet, ononion, onyxhawke, pamberger, paradoox, perseph12, phanatic, phinnia, rainbow, reannon, redheadedmuse, rockswealth, s00j, samari76, saraphina_marie, sfrose, shadows1839, shamangirl, siderea, simplykimberly, smiles1_9, smozz, softlywhispered, sothe, spikesandstuds, spinningwheels, spydielives, staleoncespoken [deadjournal], sunastria, sushis, swisss_misss, tallin, tapadance, techempage, teddywolf, temima, terri_osborne, theladyskye, threedaysfire, transversecity, trulynightwing, turtleduck, unknownrockstar, unquietsoul5, vulpine137, welshbard, wired_lizard, wishonredsox, wyrdwriter, ... | ||
| Also Friend of: | 3: foreverbeach, hpjmom, kleinzeit | ||
| Member of: | 67: 21_gashes, _b0st0n_snark, _we_are_lost, allporn, arisia, arisiaprog08, b0st0n, barbiecollector, barryfanilows, bearded_dragons, beauty101, bird_watching, bo_sox_babes, boston_eats, boston_friends, boston_photos, bostondisabled, bostonmovietime, cavies, ceremony_ma, copingwithlupus, eric_in_elevatr, fab_5, fan_investors, fandom_counts, fandom_speaks, feelingsoxy, fibro_for_life, fmspagan, gateway_sf, gothicboston, heroes_live, hobbitfanciers, hounds_of_hell, imeldas, immortalsociop, innocence_jihad, keeshond_fur, liberal, librarything, lj_2008, lj_policy, longhair, masspagans, my_name_is_earl, nesfa, newenglandgoth, nonfluffypagans, northshore, note_to_asshat, pagan_hymnal, pagan_prompt, paidmembers, painresearch, pandemonium_bks, philcon, pi_con, pimp_my_altar, redsoxicons, sfwriters, shoe_fetish, tarot, therealljidol, tivolovers, tolkien_books, urban_nature, zigguratlabs | ||
| Account type: | Paid Account | ||
